Monday, September 26, 2011

Trying for a rainbow

When a rainbow appears, it does not mean that the storm never happened or that we are not still dealing with its aftermath. It means that something beautiful and full of light has appeared in the midst of the darkness and clouds.
~Anonymous

Paul and I are officially trying for our 3rd child. Those in the babyloss realm refer to the first child born after loss a "rainbow baby", and while that sounds kind of lame, the above quote puts it into proper perspective. We want to move forward and bring our baby (or babies) home. We can never, ever replace our twins, nor would we want to, and our subsequent pregnancy will be fraught with fear, concern, anxiety and the unknown. It's very possible - even likely - that the birth of another child will bring with it very mixed feelings since our daughter and son should be here, too, but we've read all of that is a perfectly normal response to the very complicated grieving process after a second or third trimester loss.

Physically, my body is back on track. It took longer than I would have wished for my first period to come, a wait that was infuriating to me since my body has always very regular. I felt relief and a bit of resentment when it did finally come. (The sight of blood may haunt me for years, even when I expect it.)

I called and scheduled a hysteroscopy with Dr. M., our fertility doctor, as requested. (For those who don't know, a hysteroscopy is insertion of a hysteroscope, or camera, through the cervix, which has been manually dilated. The uterus if filled with either fluid or gas to expand it and make it possible for the doctor to view every surface. In my case, sterile saline was used and I'm glad, because recovery from the gas procedure brings with it pain up by the shoulder as the gas dissipates.) Paul and I each took half a day off of work for that appointment and drove there in near silence, petrified and worried. I was scared to death that it would hurt. I'm so tired of these invasive procedures I've had to endure as an infertile, each time hearing it wouldn't hurt and then finding myself in excruciating pain. To say I was a little edgy upon arrival at the clinic would be an understatement. When we heard I'd somehow dropped off the schedule, I just about lost it! Sierra said, "Don't worry, you can just try on your own this month and then we'll reschedule the procedure for next," to which - in near hysteria - I exclaimed, "Absolutely NOT! Dr. M. thinks a polyp in my cervix contributed to our loss and we REFUSE to try again until we know it's gone!" She immediately got on the phone with Dr. M. and informed him he would be doing my hysteroscopy even though it wasn't on the schedule (apparently they had several similar issues that day). Once in the room, Sierra convinced me to let her give me nitrous oxide before Dr. M. started injecting numbing medicine into my cervix (the part of the procedure she said actually hurts), and I relented. And wow, I'm so glad I did. I felt the drunken buzz of the laughing gas and heard the buzzing in my ears, but only felt the smallest pinch with the first injection. He had to inject all around the outside of my cervix and I felt nothing else. Whee! The outcome was fine. The offending "infarcted endocervical polyp" that had been the source of much bleeding and spotting during pregnancy was mysteriously absent, either from the D&C or through the natural disintegration of the tissue. I do have three small polyps in my uterus, but removing them would only "beautify" my uterus and wouldn't likely positively or negatively impact a future pregnancy.

And with that, Dr. M. officially gave us the green light to try again. Suddenly, some of the overwhelming dread and anxiety I'd been feeling about trying again dissipated. Paul said he felt relief, too. That appointment had been built into a giant juggernaut in both our heads. As of today (actually, a couple of days ago), we've completed the "trying" portion of this cycle. Now commences the waiting (and the use of progesterone suppositories). Dr. M. claims that I'm technically "more fertile" right now than usual because of our recent pregnancy, but neither of us really holds much hope that this natural cycle will work. Not to worry...I ordered the $850-worth of Menopur from England that we needed to make a full cycle's worth, and it's sitting in the fridge just in case we do need to go back to injectibles in October. (And you wonder what the butter compartment of a refrigerator is for. Menopur and mini-Lupron, FemDophilus and progesterone suppositories, oh my!)

We're peaceful...and afraid. Unless you've experienced a second or third trimester loss, you can't probably understand why we'd feel fear. We *should* be excited, right?! Everyone is so excited for us! Yay, you're trying again, that's great!!!!

It's complicated, so forgive us if we're more cautious than excited. We desperately want to have our own children, if it's in the cards. Obviously, we're doing everything we can to achieve that goal. Oddly, our horrible grief has made both of us want children MORE. Yes, it sucked, and yes, it was so painful, but to see our children with our own eyes, to look at them in love and wonder and imagine what they would have looked like, what their personalities would have been like, how they would have interacted as brother and sister, fueled a desire to do it again. It was worth the pain and sorrow.

But alongside our desire to have children is this fear that we'll only lose them. We have no frame of reference for what a "normal" pregnancy is like, and unfortunately, our experience stole our ability to ever look on pregnancy as innocent and joyful. Babies are not supposed to die before their parents do, and ours did. We also worry a little bit that perhaps we won't conceive again, that this was our one and only shot in 3.5 years of trying. We feel a little angry and yet resigned to the fact that getting pregnant, for us, involves so much planning and scheming and medical intervention, but that's not going to stop us from trying.

Am I physically ready? Yes. Are we emotionally ready? Who knows? Maybe, but probably not. It just really doesn't matter. I'll be 37.5 years old on Saturday. Six more months and our probability of conceiving by any means takes another big statistical hit. We have to go while the goin's good...and pray for a positive outcome.

Sunday, September 18, 2011

Twelve Freedoms of Healing In Grief

You have the freedom to realize your grief is unique.
You have the freedom to talk about your grief.
You have the freedom to expect to feel a multitude of emotions.
You have the freedom to allow for numbness.
You have the freedom to be tolerant of your physical and emotional limits.
You have the freedom to experience grief attacks or memory embraces.
You have the freedom to develop a support system.
You have the freedom to make use of ritual.
You have the freedom to embrace your spirituality.
You have the freedom to allow a search for meaning.
You have the freedom to treasure your memories.
You have the freedom to move toward your grief and heal.
                                   
~Alan D. Wolfelt, Ph.D

Friday, September 16, 2011

These hands

Five years ago today, I married my best friend, the love of my life, the most perfect man in the world for me. Our union was witnessed by a small group of family and dear friends, outside under the trees at the Tacoma Nature Center, on a beautiful Indian Summer day.

Our photographer used the photo-journalistic style at my request. The details of our day were important to us both and I wanted to be sure the littlest things were captured: the dahlia and grouse feathers in my hair (we married on the third weekend of grouse season, significant to my hunter husband); the gorgeous sunset-hued dahlias (my favorite flowers) in my bouquet, the corages and boutinierres, and all around the reception room; our wedding clothes (let's face it, we rarely dress up, so had to capture the occasion for posterity!), and our rings.

We hold hands constantly, out of habit, comfort and pure enjoyment, always out in public and often just sitting at home watching TV, my pale, slender fingers counterpoint against his huge hard-working hands.

I picked up our bereavement photos from the hospital a couple of weeks ago, and gasped when I saw them for the first time. The hospital photographer had placed our babies, wrapped together in their blanket with only heads and hands visible, on my still-swollen belly and arranged our left hands, wedding rings showing, over top of them. I remembered the pose, but the significance was lost on me at the time.

Our vows included the phrase, "...in good times and in bad times, as long as we both shall live." We never dreamed what those bad times could entail. (Of course, what was a sad and tragic day was also glorious and magical, because we saw the products of our love for eachother in person.) These hands will be through a lot more in the years to come, both good and bad I'm certain, but we'll go through whatever comes together.

Sunday, September 11, 2011

Precious gifts

In the first few days after our loss, the Internet became almost a fixation for me. I researched and reached out and struggled to find others who knew how I was feeling. I soon found photos on others' blogs and followed links to the non-profits behind them. What treasure was waiting to be discovered there, for they each offered wonderful, free items of remembrance for parents who have lost their babies.

One that excited me most, Calvin's Hats, provides right-sized, hand-knit (or crocheted) baby hats for parents who lost their babies. These hats are made by volunteers using whatever patterns, yarns, colors and embellishments strikes their fancies, and are sent to Calvin's Hats to be forwarded to parents who requested them.

I sent in my request for our babies the first or second week after our loss and waited impatiently for the hats to arrive in the mail. I held my babies in my hands, kissed their tiny heads, but had to leave them behind at the hospital, and while I have their hand and footprints, the size of their bodies is only in my memory...I had nothing tangible. For someone who hasn't lost a baby, the need to have a physical item to remember size by probably seems weird, but if you've been there, you know. Gosh, and the thought that someone would take the time and the love to knit something that would fit my babies' heads meant so much.

The hats arrived on Friday night. Annie Wilhelm, the founder and director of Calvin's Hats, had been in email contact with me so I knew they should be coming. I grinned from ear to ear as I pulled the slightly crumpled manila envelope out of our big green mailbox, and gasped as I saw our names followed by "♥ Parents of ____ and _____ ♥".

I waited until I was in the house with Paul to open it, and pulled out a sweet irridescent fabric pouch. Inside, two precious white hats, each with a tiny charm tied on with a bit of colored ribbon, his and hers. In my hand, they are perfect. The exact right size. See, Paul and I had been trying to recall the approximate circumference of their little heads. We thought the circle made with thumb and forefinger was correct (his more than mine...bigger fingers). The hats we received are correct and so wonderful.

I gushed to Annie my appreciation, and she shared the name of the woman who created ours. On a whim I scrolled down the Calvin's Hats Facebook page, and there she was. I felt compelled to send her a private message, which said:

Hi ____,

You don't know me, but I just found out from Annie that you're the creator of the two perfect, tiny white hats we received today from Calvin's Hats. Our twins, _____ and ______, were delivered at 14 weeks 2 days on August 5th, 2011. This was our first pregnancy after 3.5 years of infertility and it was complicated from the start. We never dreamed it would end so badly. I can't tell you how much it means to hold these two little white hats in my hand, knowing - and seeing - that they're exactly the right size for my tiny babies' heads. We received many things from the hospital in our memory box, but nothing "right sized". Your work is such a gift.

Thank you... ♥
All of these people who have been inspired to help others through their grief, whether the nurses at our hospital or these wonderful artists and crafters and photographers, do such a service to all of us. I hope they know just how much it truly means.



Saturday, September 10, 2011

20 Things Parents of Angels Wish You Would Remember...

Many of these things have been on my mind and hurting my heart lately, so I thought I'd share this piece, written by someone else (name never mentioned, but whoever you are, thank you).

1. I wish you would not be afraid to mention my baby. The truth is just because you never saw my baby doesn't mean he or she doesn't deserve your recognition.

2. I wish that if we did talk about my baby and I cried you didn't think it was because you have hurt me by mentioning my baby. The truth is I need to cry and talk about my baby with you. Crying and emotional outbursts help me heal.

3. I wish that you could talk about my baby more than once. The truth is if you do, it reassures me that you haven't forgotten and that you do care and understand.

4. I wish you wouldn't think that I don't want to talk about my baby. The truth is I love my baby and need to talk about him or her.

5. I wish you could tell me you are sorry my baby has died and that you are thinking of me. The truth is that it tells me you care.

6. I wish you wouldn't think what has happened is one big bad memory for me. The truth is the memory of my baby, the love I feel for my baby, the dreams I had and the memories I have created for my baby are all loving memories. Yes there are bad memories too but please understand that it's not all like that.

7. I wish you wouldn't pretend that my baby never existed. The truth is we both know I had a baby growing inside me.

8. I wish you wouldn't judge me because I am not acting the way you think I should be. The truth is grief is a very personal thing and we are all different people who deal with things differently.

9. I wish you wouldn't think if I have a good day I'm "over it" or if I have a bad day I am being unreasonable because you think I should be over it. The truth is there is no "normal" way for me to act.

10. I wish you wouldn't stay away from me. The truth is loosing my baby doesn't mean I'm contagious. By staying away you make me feel isolated, confused and like it is my fault.

11. I wish you wouldn't expect my grief to be "over and done with" in a few weeks, months, or years for that matter. The truth is it may get easier with time but I will never be "over" this.

12. I wish you wouldn't think that my baby wasn't really a baby and it was blood and tissue or a fetus. The truth is my baby was a human life. My baby had a soul, heart, body, legs, arms and a face. I have seen my baby's body and face. My baby was a real person.

13. My babies due date, Mothers Day, celebration times, the day my baby died and the day I lost my baby are all important and sad days for me. The truth is I wish you could tell me by words or by letter you are thinking of me on these days.

14. I wish you understood that losing my baby has changed me. The truth is I am not the same person I was before and will never be that person again. If you keep waiting for me to get back to ""normal" you will stay frustrated. I am a new person with new thoughts, dreams, beliefs, and values. Please try to get to know the real me-maybe you'll still like me.

15. I wish you wouldn't tell me I could have another baby. The truth is I want the baby I lost and no other baby can replace this baby. Babies aren't interchangeable. Besides, you do not know whether we have fertility problems too.

16. I wish you wouldn't feel awkward or uncomfortable talking about my baby or being near me. When you do, I can see it. The truth is it's not fair to make me feel uncomfortable just because you are.

17. I wish you wouldn't think that you'll keep away because all my friends and family will be there for me. The truth is, everyone thinks the same thing and I am often left with no one.

18. I wish you would understand that being around pregnant women is uncomfortable for me. The truth is I feel jealous, and reminded of my own pregnancy.

19. I wish you wouldn't say that it's natures way of telling me something was wrong with my baby. The truth is my baby was perfect to me no matter what you think nature is saying.

20. I wish you would understand what you are really saying when you say "next time things will be okay". The truth is how do you know? What will you say if it happens to me again?

Thursday, September 1, 2011

My heart overflows...

What to say, when a friend loves you so much she writes about you on her own blog?

Thank you, Lena. I love you...and it helps Paul and me both to read our story from your perspective.